Was up early this morning for my appointment at UBC. I did the drive and I thought I did quite well considering I do not drive rush hour traffic and haven't for years.
              I am very disappointed with my appointment. I was there for a little over an hour . My expected four hour appointment, ended up to be a one hour appointment. My new neurologist is brand new. Penny Smythe (her dad was my first neurologist back in 85). She writes down lots while listening to me talk of my symptoms. She proceeds to check my reflexes look into my eyes and a few other neurological test. After evaluating me she felt I was Benign mild.
              Now here is the kicker. The top neurologist comes in and she reads her findings to him and he does a few neurological tests, eyes, reflexes, walking etc. I am not benign mild I am not RRMS....he says to me that I am progressive.
              I ask him what he means by that? Meaning am I secondary progressive or what? He tells me he does not want to classify, that he does not like to say more than just that.... that I am just progressive. I came home with a prescription for Elavil for the pain in my legs. Done finished.....go back in 6 months time for a follow up.

              I feel like the medical system has put me out to pasture. Can you imagine if I did not have my supportive internet friends and husband. Looks like I am not a candidate for the ABC drugs which tells me that I will just keep going down hill..... Is there anything that I can take for my fogginess, brain farts and empytiheadedness? Is there anything for my imbalance? How about my fatigue, heaviness and exhaustion? So many questions and no answers. The Elavil is an antidepressant..but my dosage is so low it is just for the pain in my legs. I feel ripped off with my UBC appointment.

              Ok finished venting.........I already had a nap and know that with a good night sleep I will feel my ole self again. It sure was an eye opener and kick in the pants today.
Dora

EMAIL ME
Dora MS Mistress