4.04.2009
Pain and Weakness
Dreams
My heart aches for what I dream in dreams
but leave behind on waking.
I hear such music,
feel such love
but wake to such despair.
I dreamt I heard a thousand voices
singing harmonies from God
and woke to fading echoes in the dawn.
I dreamt I found a kindred soul
loved deep within my heart
and woke to empty longing in the dawn.
Is there yet to be a day which dawns
without despair and heartache,
a dawn where hope and joy do not flee.
Need I stay within my dreams
and never wake to see the day
or will love and music someday wake with me.
Stanzas I wrote today:
I dreamt I had both health and vigour
surging through my veins
and woke to pain and weakness in the dawn.
Need I stay within my dreams
and never wake to see the day
or will strength and wellness someday wake with me?
1.07.2009
Coming Soon to a Life Near You
1. Breakthrough my "neurotic procrastination" and make a "guerrilla" film from start to finish by the end of February. (You can thank Scientific American Mind for providing me with my self-diagnosis of "neurotic procrastinator"; as for the "guerrilla" part… I've realized that I've become obsessed with permissions and copyrights, not a completely bad thing but I think that sometimes I just use that as an excuse to continue procrastinating.)
2. Add a short workout to my morning routine. (It's a two-hour long routine anyway, so what's another 15 or 20 minutes?)
3. Get a vermicomposter (for all of those banana peels I'm left with after making my protein shakes)… Corollary: Try not to be grossed out by the fact that it means I'll have worms living in my apartment.
4. Try to complete sleep restriction therapy and get a handle on my insomnia.
5. Learn more about Judaism. (I mentioned my interest in Judaism a bit in my post "I Believe…" and followed up a smidge in "A Piece of the Pi", but it's not something I feel like discussing in depth on my blog.)
6. Get a tattoo to memorialize my cat Tobi. (The design that I've come up with incorporates the Egyptian goddess Bast; I'll post a pic of it once I get inked.)
7. Learn some animation techniques.
8. Finish writing current draft of my feature film screenplay and submit it to Sundance to apply to their Screenwriter's Lab. (I have more film goals for myself for the year, but I'm trying to have this list reflect that I do try to have a balanced life… try.)
I did think about some of these things from a "resolution" standpoint, the types of ways that we try to "improve" ourselves: lose weight, quit smoking, etc. I remember this book that I read that talked about how many of us focus on "packaging" and "marketing" ourselves but spend far too little time on "product development"… so I thought about whether I'm addressing "product development," i.e. improving myself as a person on the inside. While I suppose starting to work out and compost could be seen as improvements, I think they're still more external.
Internally, in terms of character or personality, I suppose I would like to be more patient. And while it may not look like I'm addressing that with my list, I think that reducing my insomnia would increase my patience as a direct result of increasing the amount of truly restorative sleep I get (which is practically nil at the moment). So, since it addresses both health and character, I guess I should put that "resolution" at the top of the list.
I start courses on both Judaism and animation next week, so I'm getting going on those ideas. And I just bought a hip-hop workout DVD that I put in this morning (and realized just how long it's been since I took a dance class… yikes!). I'm already working on my guerrilla film and plan on doing some recording for the vocal track on Friday. So that just leaves my vermicomposter, tattoo, insomnia and screenplay. The vermicomposter and tattoo should be simple enough, but the other two are rather more daunting. Then again… I don't need to do it all right away, right? So maybe I'll just keep on with what I'm doing now and address those two when I've adjusted to my new routines and finished this little film.
Am I procrastinating by leaving these bigger goals for later? Maybe. But the fact is those courses that I want to take start now and I can't change that. And I can only do so much. Am I now just justifying myself? Possibly. But it's my blog so I can justify if I want to (hmm, "justify" may rhyme with "cry" but the extra syllables kinda mess up my play on words… oh well).
Labels: education, film, health, judaism, philosophy, tattoos, writing
1.03.2009
The Flip Side
So I hope that balances out yesterday's post and people don't think that every person I know made me miserable these holidays. Mostly I think I'm pretty good at choosing my friends. Trying times like these highlight the fact that my judgement is far from infallible, but mostly I like the lot of you.

Labels: health
1.02.2009
Happy Fracking New Year
Driving, even in the best of weather, is tiring for me. I hate that fact because I love to drive, but I have had to accept that it drains me. And driving in bad weather obviously makes it worse. Since I only have chunks of energy that last for about two hours, if you (and I speak to the general "you", no one person in particular)... so if you want me to be present at an event that will be longer than one hour (which most holiday functions are) perhaps you could offer me a ride and not just be upset when I honestly say that I'm not up to it.
If you tell me that I can call you any time I need medication or other items picked up from the store, don't be surprised when I take you up on it. And please don't make it sound like I've inconvenienced you, because that's why I didn't want to call you in the first place. But you insisted that you wanted to help out and I foolishly believed you.
I'm sorry that I'm still grieving the loss of my cat. And I'm sorry that I'm having a hard time dealing with my first Christmas since my grandmother died and an even harder time watching my grandfather cope with this Christmas. I don't have much of a reserve to begin with and all of that grief leaves me with nothing left. I did tell everyone that I didn't want to do the holiday thing except for spending Christmas Day with my grandfather, so why are you so upset with me that I did what I said?
This is a marathon I'm running, people, not a sprint. I don't get a day off from it. So I'm sorry if I can't be all sweetness and light and accommodate everybody, but you all seem to think it's a sprint and we should have passed the finish line already. But I will never live to pass the finish line unless they find a cure for lupus, sjögrens and chronic migraines. So you guys go on home and pop your champagne, your sprint is done. I'll just keep limping along in my solitary marathon. I had a feeling I was out there all alone. Now I know for sure.
Labels: health, rant, special days
8.29.2008
Listeriosis: What Harper Doesn't Want You To Know

So here's an article that I found interesting. Yes, it's from the Liberal Party but, out of everything I've seen and read about the outbreak, this makes a heck of a lot of sense to me...
The Conservative government continues to show a blatant disregard for Canadians with its secrecy and unaccountability around the listeriosis crisis, Liberal Public Health Critic Carolyn Bennett said this week.
"Our warnings last week that cuts to critical food inspections will endanger the health and safety of Canadians have proven to be valid," said Dr. Bennett.
"First it was a leaked Treasury Board document revealing the Conservatives' secret plans to make cuts at the Canadian Food Inspection Agency, and now it's the head of the union that represents food inspectors telling us that some of these cuts have already taken place. And now we have had multiple deaths linked to this tainted meat crisis.
"The death toll continues to rise and people continue to be hospitalized from tainted meat, and yet the Conservative government is misleading Canadians about its plan to abandon critical food safety inspections. This government's cavalier attitude towards Canadians' health is astonishing," she said. "Food inspectors should be inspecting food, not paper."
Read the full article...
1.08.2008
Update
I also haven't been doing much paid posting of late. Partly because of my health and other commitments, partly because most of the opportunities don't interest me. But I just had to share this little piece of paid-posting irony: I didn't check for new opps yesterday because I'd slept particularly badly the night before. And guess what opp I missed out on...
Help Visitors Get a Good Night Sleep!
Discover the ultimate cure to insomnia, with this Sleep Deprivation CD
Are you kidding me?! Oh well. *sigh*
12.31.2007
Migraine Trumps Sleep Restriction
As my last post of the year, I had been planning to post a 2007 "Hot vs. Not" List about my random opinions, such as:
Friends you can make films with... HOT
Friends who only know how to gossip... NOT
Intelligent and entertaining independent films (Walk All Over Me)... HOT
Yet another Hollywood sequel or remake (Spiderman 3, Pirates, etc.)... NOT
Evan Biddell, fashion designer who won Project Runway Canada... HOT
Elina Viola, local fashion designer... NOT
Bob Rae, politician with a brain and a heart... HOT
Stephen Harper/George W. Bush, politicians with neither brains nor hearts... NOT
And so on and so forth...
But I really can't be bothered with such trivialities right now. So let me sum up 2007 on a personal level: I overextended myself for people who weren't worth even extending myself for in the first place and my health has been declining all year as a result, but thankfully these people are out of my life and I'm working hard at getting my health back on track. My various and sundry opinions about pop culture, politics and pugilism will have to wait. (Okay, so I've got nothing on pugilism, but doesn't it make for an intriguing triple alliteration?)
I'm hopeful that if I can avoid toxic people and keep my health as a priority, 2008 will be a much better year. So I guess those are my two main New Years resolutions. And resolution number three is to finish the second draft of my feature-length screenplay (my film work being necessary fodder for my mental health). Now excuse me while I continue to hibernate in an attempt to recover from this sleep stuff and the mother of all migraines.
Labels: bush bashing, fashion, health, odds and ends, pop culture
12.25.2007
Sleep Restriction: Days 8 & 9
Haven't managed to duplicate my success yet. Slept for 5.5 hours each of the last two nights, but not straight through. Migrained yesterday, but think that was chinook not sleep restriction. Still headachy today, though.
Labels: health
12.24.2007
Sleep Restriciton: Day 7

I slept for 5.5 hours straight last night! I hope this is actually the sleep restriction starting to work and not just a fluke. I guess we'll see tonight.
Labels: health
12.23.2007
Sleep Restriction: Day 6
Total hours slept: 5 out of 6.
According to book doc suggested (read in overtired state in wee hours of the morning), if I can maintain 85% sleep efficiency for 2 wks, I can up my sleep time even if not sleeping for full 6 hours. Decided that 5 hours is close enough.
Labels: health
12.22.2007
Sleep Restriction: Day 5
Labels: health
12.21.2007
Sleep Restriction: Day 4
Total hours slept: 5.5 out of 6 (Getting closer! Once I'm sleeping for six hours straight, I get to increase my time spent in bed. Interestingly, I couldn't bear the whole yoga/warm bath routine last night and decided to skip it. Will go back to it tonight to see if numbers go up, down or stay the same before drawing conclusions.)
Labels: health
12.20.2007
Sleep Restriction: Day 3
Oh yeah, almost forgot... another whopping 4.5 hours of sleep. Woohoo.
Labels: health
12.19.2007
Sleep Restriction: Day 2
Total hours slept: 4.5 out of 6.
Symptoms: Dry eyes getting drier; IBS acting up; difficulty concentrating; headache (but no migraine yet... touch wood).
Labels: health
12.18.2007
Sleep Restriction: Day 1
Tonight, I want to go to bed now and not wait another two hours. But I'm afraid that two hours from now, I'm going to be at that overtired point and still not be able to go to sleep. Can I just fast forward to when this therapy starts to work?
Labels: health
12.16.2007
To Sleep Perchance to Dream
Needless to say, I would like to be able to sleep through the night and be able to do it without meds. So I'm going to give this therapy a try, even though I'm dreading the first couple of weeks because I know I'm going to be incoherent at best and flaring and migraining at worst (at least I hope that's the worst case scenario). I probably won't be blogging during the initial stage of this treatment, unless I get the urge to chronicle my experience. If that does happen, be prepared for a certain level of incoherency for which I'll apologize in advance.
Wish me luck!
11.01.2007
Currently Flaring
7.27.2007
Reefer Madness
The authors said people diagnosed with mental illness prior to their participation were excluded from their research. But did they actually bother to test the people who participated who had yet to be diagnosed. Because a lot of people who have some symptoms of mental illness will use cannabis in an attempt to relieve them, but they haven't actually been to a doctor about those symptoms and therefore haven't been diagnosed. But the study doesn't count that... because it's not an actual study! It's report based on several different studies that had several different parameters and objectives.
Aside from the fact that it's an obviously biased report, it's just plain bad science! So please, don't believe everything you read. Find out the actual facts and reach your own conclusions. Because this report is just a bunch of B.S.
7.19.2007
My Poor Car

And what you can't see... all of the other wheels are pointing straight ahead, which this one obviously isn't (can you say "bent rear axle," boys and girls?). Plus there are scratches all along the side of my car where the other car dragged against it for a while.
I still don't know if I'm getting any compensation from the insurance company even though it happened over a month ago. And I fear that my dear sweet car may be a write off, because the door doesn't seem to be closing properly... not a good sign in a car with unibody construction. But I'm waiting for the estimate until the insurance company rules yay or nay, because Newt is obviously not driveable at the moment and towing it back and forth from the garage is not the way I want to spend my time or money (or more accurately, my limited number of CAA tows).
The lack of a car is wreaking havoc not just with my daily routine but also my health. You can't see it in the photo, but Newt has tinted windows. And no, it's not to look cool, it's to protect me from the sun because exposure to sunlight triggers Lupus flares. Needless to say, taking the bus leaves me a little overexposed. Especially because (a) the buses in Calgary don't run often enough and they don't run on schedule, so there are often very long wait times involved and (b) for some reason, even though Calgary is probably one of the sunniest cities in Canada, they don't believe in providing shade in their bus shelters... the roofs are clear plexiglass! What the frack?
Anyway, I'll be very glad when this all gets sorted out. And fortunately, my Dad has stepped in so I'll be able to cope even if the insurance company shafts me. But I'm still crossing my fingers that it'll all work out all right.
7.13.2007
The Spoon Theory
Labels: health
6.22.2007
Debate About Stem Cell Research Veto
read more | digg story
Labels: health, news, politics
5.27.2007
The Eyes Have It
The reason I find this interesting is that Lupus is an autoimmune disease with chronic inflammation. Is there actually a connection between these two diseases? I would really like to know. I hope someone somewhere out there is studying this. Because I don't want to end up with macular degeneration like my grandmother. I truly can't say this with enough emphasis: I couldn't bear to go blind.
Labels: health
5.15.2007
Care for a Spot of Cooking?
P.S. Seriously, I want those mushrooms. Where does one buy Creole Seasoning Rub?
Labels: food, health, odds and ends
5.03.2007
Gala a No-Go
4.28.2007
The Secret Life of Weirdgrrl
I write a lot of fluff on this blog. But if you read between the lines, especially my poetry and the music that I talk about, you might see that the fluff is simply a costume that I feel comfortable wearing in front of others.
No, I didn't write about Virginia Tech even though I'm working on a film to commemorate the Montreal Massacre that happened almost 20 years ago and that I still remember like it was yesterday. I don't write about a lot of what's going on in the world even though these issues are ever present in my mind and weigh heavily on me. I can't even bring myself to write about Canadian poltics much of the time because I get so frustrated that I become incoherent. I vent about President Bush's foreign policy by posting cartoons and clips from The Daily Show, not by offering up the deep political analysis that I know I'm capable of.
Why? I'm not entirely sure. I think it's partly because of my health. That I want to seem like a happy person because I really feel like a burden and I don't want to inflict my burdensome self on someone else. And I think it's partly because of my art. That when I talk about these things in every day life, I'm less likely to have passion to unleash when pen hits paper to write a poem or a script.
Since I've mentioned my health, I'd like to take a moment to talk about it. I've mentioned before that I have various health conditions: Systemic Lupus Erythematosus, secondary Sjögren’s Syndrome, Hashimoto's Thyroiditis with intermittent Hashitoxicosis and the occasional bout of IgA nephropathy. And let's not forget the migraines.
A lot of people compliment me on the positive attitude I have towards my life. Not to say that I don't actually possess a certain amount of optimism, but I feel anything but positive on the inside most of the time. It's not that I'm repressed or trying to be fake, I just can't stand talking about it anymore.
My rheumatologist likes to show me off to her residents as an example of someone whose lab results indicate that I should be non-functional and yet I "present like a well woman." What I can't bring myself to say to her is that I present that way because I have completely changed my diet, my lifestyle and my goals. I am incapable of holding down a job that requires regular hours. I need a minimum of nine hours of sleep a night which is very tricky as I am also an insomniac. It takes me at least one hour (if I'm lucky) to fall asleep. I'm thrilled if I sleep for four hours in a row; two and a half to three hours at a time is more likely. And then I have to try to fall asleep all over again.
I wake up in the morning feeling like I've been hit by a train and it takes a good hour for my morning meds to kick in, but because of the assortment and timing of my meds I can't actually take them all right away. So I'm not really functional until around two hours after I wake up. So there goes more than half of a 24-hour day. Then I need to take breaks every couple of hours so I don't hit the wall of mental and physical fatigue. Needless to say, this is very limiting.
I used to dream of competing in the Olympics as a member of the Canadian Three-Day Eventing Team until I developed my first autoimmune symptoms at the age of 19. I'd hoped that I would eventually figure out how to manage them and still compete, but unfortunately that didn't happen. Then I went to vet school. I figured if I couldn't compete, I could at least treat the top-level event horses. But in my third year of vet school, my Lupus took over my life and I needed to take a leave of absence. I was never able to go back.
Last year, I became involved in the film community here in Calgary. I was working as a freelance writer, text editor and graphic designer at the time and I come from a theatre background, so this wasn't much of a stretch for me. I threw myself into it with abandon because it had been so long since I'd felt such enthusiasm for something, anything. And I've recently realized that I have to accept that I will never be physically capable of directing the feature film that I'm writing. I'm not coping very well with that conclusion.
I hate it when people ask me how my health is because good days are very few and far between. Basically, I struggle with my symptoms every day but I get sick of hearing myself talk about being sick and I also get sick of lying and saying I'm fine.
I hope this doesn't sound like a pity party and I really didn't mean to go on about it for this long, but I guess seeing another dream elude me has been a little too much to bear.
Labels: film, health, odds and ends, writing
3.16.2007
The Best Medicine
They've got cartoons:

And jokes:
A young doctor had moved into a small town and was setting up a new practice. He had a new sign painted and hung it in front of his office, proclaiming his specialties:
"Homosexuals & Hemorrhoids"
The town fathers were greatly upset with the sign and asked him please to change it. The Doctor was eager to please, so he put up a new sign:
"Queers & Rears"
The town fathers were really fuming about that one, so they demanded that the Doctor come up with a decent sign that would not offend the townspeople. So the Doctor finally came up with an acceptable sign:
"Odds & Ends"
I think it would be even better if the humour could be more focused on the disease in question, but there probably aren't a whole lot of jokes and cartoons about mesothelioma. Go figure.
Labels: health, humour, odds and ends
3.14.2007
A Different Type of Script
I had a migraine all last week. Well, technically it was two migraines but since I was sleeping when the right-sided migraine ended and the left-sided migraine began... well, I count that as one looong mother of a migraine. And I'm almost out of the good migraine meds; Maxalt is the only one that really works for me and it happens to cost about $20/dose. So that's a lot of money that I ingested last week. And I work for myself and don't have a drug plan. Kinda sucks.
Does anyone know if Canada has anything like this prescription drug card? It sounds amazing. It's free, activated instantly and offers discounts of up to 75% off all FDA approved Drugs (at participating pharmacies). Only in America, you say? Pity.
Labels: health
3.09.2007
Practical Cats
"When you notice a cat in profound meditation,
The reason, I tell you, is always the same:
His mind is engaged in a rapt contemplation
Of the thought, of the thought, of the thought of his name:
His ineffable effable
Effanineffable
Deep and inscrutable singular Name."
~ T.S. Eliot, "Old Possum's Book of Practical Cats"
The topic of pets has been cropping up a lot in my life lately. Well, I guess it always crops up a bit for me… whenever people find out I studied veterinary medicine, I usually end up fielding questions about health or behaviour or sometimes just trivia.
At the moment, I'm getting worried that my cat Emma (immortalized in my Meerkat post) might be developing diabetes.
You see, my old cat Ferdinand had diabetes. She (yes, her name was Ferdinand and she was a female cat... long story, 'nother post)... anyway, she was the first case I diagnosed all by myself when I was a vet student. Dubious achievement. My suspicions were based on a change in her urinating habits and the fact that she was quite overweight (a definite risk factor for diabetes in any species). Well, Emma is also quite overweight (my bad) and has recently been exhibiting some odd urinating habits… as in, she does it right OUTSIDE the litter box. Fortunately, I keep a plastic sheet under the litter boxes so there hasn't been an issue with cleanup and stains, but it's still a pain in the... neck.
I haven't figured out yet whether this problem is behavioural or medical. I'll need to check the sugar levels in Emma's urine to determine that. Hopefully I'm wrong. But if I'm right, hopefully it's non-insulin dependent diabetes. (Ferdinand was insulin dependent and she deregulated—meaning she switched from insulin dependent to non-insulin dependent, which I believe is unique to feline diabetes—so her next insulin injection led to an insulin overdose. I don't want to go down that road again.)
But I found this site that offers natural pet remedies. They have an herbal treatment for diabetes that looks interesting. I'll have to do a little research on the ingredients, but I'll admit I'm intrigued.
Not to neglect my other cat, Tobi (though she tends to stay hidden when guests are around and has developed a nickname of "the closet cat" because she spends so much time in—you guessed it—my closet), I also checked to see if they have hairball treatments. Tobi has a marked tendency for hairballs and she's a very picky eater and hates every hairball treatment I've ever given her. And when I feed her food that's supposed to reduce the number of hairballs, her coat ends up looking scraggly and she starts to lose weight (which she can't afford, because she's quite skinny already… not apparent in her picture because she's quite fluffy… usually).Anyway, the site didn't have a treatment specifically for hairballs but they did have this dietary supplement that looks promising. I think I'd like to give that one a try.
1.19.2007
Open Mike Night
When your body betrays you
it leaves a mark on your soul
like a bruise
that slowly turns from
blue
to green
to yellow
as the injury ages
but never goes away
like a laceration
with jagged edges
that cuts too deeply
so that infection steals in
and creates an ulcer
that never heals
like an ache
that stems from deep within your bones
so that its very marrow
feels the pain
that keeps you awake
through the long deep cruel night
and you never sleep
like a scar
that grows larger
instead of shrinking
and the skin thickens
and people think that means it doesn't hurt
when it's really more painful
and it will never go away.
I believe I could do anything
if only my body
would stop the treachery
halt the treason
cease the betrayal
that makes me want to cry out
to the stars
and the empty
lonely
dark
space
and rage against the heavens
and beat against
the great flapping wing
that steals the breath from my lungs
until I drown
or choke
on the salt water
that is squeezed from my eyes
like blood from a stone.
cm
September 30, 1998
12.10.2006
Dry Wit... Good; Dry Skin... Bad

You'd think I would have bought one before now. I mean, between having Sjögren's Syndrome and living in Calgary (dry skin capital of the world), my skin is doubly cursed. And my recent Lupus flare hasn't helped, either. Hence my proud new ownership of a warm mist humidifier.
"What the heck is a warm mist humidifier?" You might ask. Yeah, I asked the same question after I realized that it was very simple to say: "I'm going to buy a humidifier" but much less simple to choose which one. Google to the rescue. I came across this handy site: Hunter Carefree Humidifier Information. It talks about desirable humidifier features and explains the differences between warm and cool humidifiers, etc. Very informative. For example, if you have small children—which I don't (or I guess pets, which I do)—you should avoid the steam type of humidifiers... they can burn! Who knew?
So if you suffer from Sjögren's, dread the dry skin of winter or simply happen to be a resident of Calgary, I highly recommend a humidifier. My skin is happier already!
Labels: health
11.21.2006
In Sickness and In Health
But I did stumble across this new website called OrganizedWisdom.com. It's a place for people to come and share their health stories. Not to whine and complain but to share what they've learned, whether it be some sort of medical treatment or an inspirational life lesson. So far, no one has written a Wisdom Card on Lupus... so I think maybe that's what I'm meant to do.
What about you? I bet you have a story to share. So here's my challenge to you: Help others by sharing one piece of health wisdom at OrganizedWisdom.com. Not only could you end up making someone else feel better, but I bet it'll make you feel pretty good, too.
Labels: cool sites, health





